Author: Kathy Marshack

Relationships are hard, in general. Throw out all empathy from one of the partners and you get a whole new mix.

Understanding the Neurotypical – Asperger Relationship is difficult. I wrote a blog about Empathy 101 that expands on this subject of Autism Spectrum Disorder (ASD). Neurotypical persons in relationships with those with “Asperger’s Syndrome” expect and need empathy, but they don’t receive it from their ASD partners. This makes them feel alone, depressed, and socially isolated. They suffer from numerous stress-related chronic illnesses, because no one really understands what they’re going through.

If you’re a member of our ”ASPERGER SYNDROME & RELATIONSHIPS: Life with an Adult on the Autism Spectrum” community, you probably understand this or you even live in similar environments.

I see it every day in the group and I’m grateful we built this community together to support each other and share our relationship struggles.

One member said:

“I am really discouraged today. I have come to realize that I am married to a man that I will never really know. How do I deal with that?”

While another followed in a similar tone:

“I want/need to find another way…if I engage with him I lose myself, if I disengage from him I am not myself…”

One of the most important things to know about your “Aspie” partner is the quality of empathy is totally absent. Understanding this will help you better navigate your life together and you will be able to direct your energy to better take care of yourself. You are in charge and this thought can feel good.

So how can you help your relationship?

 

The Art of Detachment in an ASD/NT Relationship

• Stop taking it all personally.
• Stop worrying if you’ve covered all the bases.
• Stop beating yourself up for your flaws.
• Stop expecting more from your AS spouse than he or she can give.

 

Emotional Self-Care

Do all of the healthy feel-good things you can fit into your day. It can be very easy to focus all of your attention on your loved one and leave nothing left over for yourself. Be sure to take time to recharge. In order to give to others, you must give back to yourself. Get involved in what you love doing. Do you like reading or kayaking? Give yourself time for it this weekend.

I also wrote an article with 15 reasons why self-compassion is better than self-confidence. Take a look at it – you might find it useful.

 

Education

Your partner has just been diagnosed with High Functioning Autism? Find out what you should expect regarding this form of autism. It will help you to better understand the disorder and find ways to cope with it rather than resent it. Find local support groups and engage with other people from your community who are having the same pains as you do.

I am launching a new website soon, called “ASPERGER SYNDROME & RELATIONSHIPS: Life with an Adult on the Autism Spectrum”. I’m creating a local and international community where iit is safe to share your problems and you can get the support you need. I will also be guiding your healing process through our community. Don’t hesitate to join us once the website is launched (sign up tfor our newsletter to stay up to date).

Because those with Asperger lack empathy, they inadvertently cause others to feel ignored, unappreciated and unloved. Many cope by coming up with an explanation of why life has turned out the way it has. But these explanations change nothing. Everything you talk about should be about what you’re feeling or hearing or seeing or smelling right now. Don’t analyze. Don’t blame others or yourself. Don’t judge either. No complaining. No explaining.

Your loved one may already be meeting with someone regarding their disorder, but you may also need additional support as an NT  loved one. If you believe you are ready to seek the assistance of a health care professional and you live near Portland, OR/Vancouver, WA please contact my office or  schedule an appointment at my website calendar. For busy schedules I also offer online therapy.

 

Psychologists and journalists have it all wrong.

Why is it that even the professionals think that focusing on what is wrong in the world, or in our personal lives, will make things better? David Brooks, a New York Times columnist questions this concept in his May 16, 2019 column, “The Big Story You Don’t Read About.”

He says, “Too many journalists refuse to consider local social repair and community-building as news. It seems too goody-goody, too “worthy,” too sincere. It won’t attract eyeballs. That’s dead wrong.”

Psychologists make the same mistake with our clients. We spend a lot of time going over everything that makes people unhappy, in the misguided illusion that this preoccupation with grief will lead to answers. Don’t get me wrong, we need to grieve, to release the tensions and the sadnesses and the anger associated with life’s losses. But we also need to “repair,” as David says. We need to rebuild our lives with the strengths we have gained from our grief.

If all we do is focus on what’s wrong, it can leave us feeling hopeless, helpless, and depressed. As Brooks puts it, “People who consume a lot of media of this sort sink into this toxic vortex — alienated from people they don’t know, fearful about the future. They are less mobilized to take action, not more.” This is never truer in our personal lives too.

Two wrongs don’t make a right. Sure, take a look at what’s weighing you down. Be kind to yourself. Give yourself permission to grieve. Mull over the problem you are having, talk about it, write in your journal. But then take a pause from all of that negativity to review what you can do about the problem. Start living a purposeful life.

It’s about community.

 When I popped open my messages from my Meetup group, “Asperger Syndrome:” Partners & Family of Adults with ASD. I was rewarded by yet another deeply moving string of messages on my website. The website is a private place for members to discuss their worries and fears. They ask others for opinions and support. They share their losses and their successes.

Our group is a unique forum for Neuro-Typicals (NTs) who feel alone with the stresses and strains of life with autistics. They feel embarrassed and guilty for even complaining about their problems, as if complaining about someone with autism is somehow wrong or unkind or a terrible sin.

So, I decided to set that straight ten years ago, when I founded the group on Meetup. I thought it was time to bring this problem into the open and shine new light on the painful interactions that occur behind closed doors, within homes where an NT lives with an “Aspie.”   (“Aspie” is a brief form of “Asperger Syndrome,” and was coined by autistics).

Since that first time I hosted a small group for lunch in Portland, our group has grown to over 3500 members world-wide. We are represented on every continent, wherever NTs can access the Internet and reach out to their international community, a community that is there for them when they need to know they are not alone.

Rise above the chaos

In fact, our Meetup group is proof that community building leads to personal and social repair, the kind that can change the world by healing hearts.

Below are a few excerpts from the heartfelt email string on our website that caught my attention (without names or identifying information to protect the members). I am blessed to have these powerful people, who each day are facing their problems with grace. There may be no immediate solution to autism or to the heartache it brings to the people who love autistics, but there are answers to taking back your life by rising above the chaos.

A Meetup Member describes her grief over her ASD/NT marriage:

“First I grieved what I thought we had. Next I grieved what we really had. After that I grieved what should never have been. Then I grieved that I would never know what was real. This was followed by grieving all of the people I thought were friends, but were not. I then had to grieve that I had lost myself.

“I am building a new person. I still have tough days, though things are better. I am grateful for this group.”

*****

After a few members commented, Dr. Kathy’s responded:

“Going through the grief helps you to know the truth of who you really are. And you are loved. Taking back your life requires grieving and letting go of false beliefs. Freedom is just around the corner.”

*****

A few more comments and then a member responded:

“Thank u Dr Kathy. U have helped me enormously thru this most difficult journey.”

*****

After several more supportive members commented, another mention from Dr. Kathy to the group:

“Yes, you are an amazing group of powerful Souls. You understand and are brave and kind enough to be there for others. A day does not go by that I don’t grieve for the destruction of my family, but somehow my authentic self is stronger than grief. I no longer just make it through the day. I actually feel free as I soar above the chaos. The chaos isn’t me. The grief isn’t me either. I am so much more. And so are all of you.”

One final member comment:

“Thank you Dr. Kathy. It’s refreshing to know that the ‘chaos isn’t me.’ I have also lost my entire family. I was holding on to escape more Grief. The truth is I prolonged it. This next chapter I get to choose, and thanks to you and all those who go before me, I know it’s true.”

*****

Know the truth of who you are.

If you have a life with an adult on the autism spectrum, . . . if are ready to know the truth of who you are, . . . if you are ready to be part of a community that focuses on what works instead of the problem, . . . if you enjoy helping others do the same, . . . then I hope you join us at “Asperger Syndrome:” Partners & Family of Adults with ASD.