Whether You Have Asperger Syndrome or Not – Trust Your Instincts When Finding a Therapist

Why are some Aspies so hostile to psychologists and psychotherapy?  Among those adults with Asperger Syndrome, there is a growing movement toward acceptance instead of diagnosis.  These folks say they don’t want to be “fixed” but accepted for the unique human beings they are.  The problem is there are times when they could really benefit from professional help for anxiety or severe depression that comes from struggling with interpersonal problems, but they resist treatment.

Is there an underlying reason for this resistance? Yes, unfortunately too many mental health professionals are woefully unprepared to treat the symptoms of Asperger Syndrome.

I should know since I sought professional guidance for my daughter.  I went from professional to professional for years seeking help for my daughter’s suicidal depression and severe anxiety.  It was a school psychologist who finally turned me in the right direction and I will be forever grateful for her help.  As a result of my trials and tribulations, I was able to write my book on the subject, “Life with a Partner or Spouse with Asperger Syndrome: GOING OVER THE EDGE?

The majority of therapists are well-intentioned; they’re not the biggest part of this problem. At least they are open to learning.  You can hand them a book and ask them to consider another possibility, and they will learn.  It is the clueless and narcissistic ones that do the most damage.  Unfortunately I was annihilated by one of these clueless and self-righteous therapists not long ago and I’m still recovering from her unkind and ignorant words.

Karin is an interior decorator, turned psychotherapist, without much in the way of credentials, but a gift for marketing.  She is attractive and personable, but absolutely clueless about Asperger Syndrome.  One day she witnessed one of my daughter’s meltdowns and was stunned.  Later she criticized me for not handling the situation well. Furthermore, she told me that she would never have the problems I do because she is so much more balanced when it comes to handling these situations.

Coming from a therapist, these words hurt. But I needed to consider the source. Karin has never parented any children of her own, much less a child with special needs. How on Earth could I possibly consider her opinion seriously, when she is clueless?  When someone with Asperger Syndrome (or their family)  is seeking professional help, they are apt to run into a therapist or two or three like Karin.  No wonder they’re angry or depressed by the therapy experience.

So how does one choose a therapist when the odds are great that you will run into more than one Karin?  Whether you have Asperger Syndrome or want help with any other of the myriad problems that plague humanity, always trust your instinct.  Never give up but do trust your instinct.  Don’t waste your time and your heart with a therapist you cannot trust.  I love this quote from Buddha, because he sums up the situation in that inscrutable way that only the Buddha can.

“Believe nothing,

no matter where you read it,

or who has said it,

not even if I have said it,

unless it agrees with your own reason,

and your own common sense.”

Turn Worries into Solution Incentives

I worry. I worry about all kinds of things. Not that all of this worrying has accomplished much in and of itself. However worrying can serve a useful purpose if it directs your attention to problem solving. I think worriers, more than most take a hard cold look at reality. The problem is we can scare ourselves to death with this worry…worry over the economy…worry over the political scene…worry over our health…worry over environmental degradation…worry over the problems our children will inherit.

Or…we can take our worries as incentive to search for solutions.

I can’t tell you everything is going to be OK. I am just a psychologist, not a fortune teller. But what I do know is that solutions do not come from worry or fear or other forms of negativity. Solutions come from putting our attention on what is right and good and pure and loving and compassionate. Solutions come when we give ourselves to others to make the world a better place. Solutions come when we tear ourselves away from our negativity and we are grateful for all of the small, wonderful things that bring us happiness. Believe it or not, solutions often materialize out of thin air when we believe that the challenges we are facing are a gift, not a burden.

If you have faith and hope you will not only come through hardship but you will be better for it. Like me you may still worry, but let those worries guide you to the kind of solutions that can only come from your indomitable human spirit.

New Support Group in Portland Focuses on Helping Partners and Spouses of Adults with Asperger Syndrome

I’m excited to announce that I’m launching a new support group, “Asperger Syndrome: Partners and Family of Adults with ASD,” in Portland, Oregon. This is not a therapy group, rather a place for people to learn from others and to share their story about the often frustrating and isolating life of loving an adult with Asperger Syndrome Disorder (ASD).

I was motivated to start the support group after posting the first chapter of my new book on my website. I was completely overwhelmed by the huge response from people around the world looking for guidance and support on how to navigate a relationship with a partner with Asperger Syndrome.

In addition to providing a safe, supportive place to share their experiences, I see this group as a forum to learn more, through books, films and guest speakers. For example, films such as “Mozart and the Whale” will stimulate important discussions about life as a partner of an ASD adult. I’ll also invite experts in the field of Asperger Syndrome to speak, thereby creating a counterpoint to personal experience.

The group is being organized through Meetup.com. Those interested in joining the group in Portland, Oregon can go to www.meetup.com/Asperger-Syndrome-Partners-Family-of-Adults-with-ASD/. There is no charge for participating in this group. This group is exclusively for Neuro-typicals, for those who love and care for adults with Asperger Syndrome.

The first meeting will be held on Saturday, May 23rd at 1:00 p.m. The location is found at the group web page. We will be discussing my new book, “Going over the Edge?” Please sign up at www.meetup.com/Asperger-Syndrome-Partners-Family-of-Adults-with-ASD/.

I look forward to meeting you and hearing your stories.

Creative Family Fun on a Tight Budget

With the recent dive in our economy, families are increasingly stressed about the future. Whether it be lay-offs, budget cuts or rising prices, many families are making drastic adjustments to their lifestyle just to survive. Is there time or money left for recreation? Should that be a priority? Without a balance between work and pleasure, the family will become stressed out and anxious which ultimately creates an unstable home environment.

The key to this balancing act is to be creative! There are many alternatives to fun family time that won’t break the budget. A little extra time and research may be required, but it will be well worth the effort. Here are a few ideas for fun and inexpensive alternatives:

1. Go to the library. The library has a large variety of books, DVDs, videos, and audio books and the best part is they’re FREE. Make it a family trip and everyone can pick out something that will entertain them.

2. Entertain at home. Instead of going out to dinner with friends, invite them over for a potluck. Everyone can pitch in by providing a portion of the meal which lowers the cost drastically and gives you the opportunity to try new recipes. After dinner, play cards, charades, board games, or just enjoy some good conversation. It will be a relaxing evening and the whole family can get involved.

3. Enjoy nature. With spring in the air and summer just around the corner, it’s a perfect time to enjoy the outdoors. Get online and research trails and hikes in your local area. Most parks and hiking trails have free access. While you are out and about, start a new hobby like bird watching, fossil collecting, or photography. All of these require little expense and you can get the whole family to participate.

With a positive and creative attitude your family can come up with their own list of exciting and low budget ways to have fun. I guarantee you will have some good family fun that everyone can enjoy.

Fascinating New Research Highlights Genetic Link to Autism

From Turkey to Ireland, the news of the genetic link to Asperger Syndrome and other Autism Spectrum Disorders took the world by storm.  Within a few hours news agencies all over the world were announcing the discovery first published in Nature – an international weekly journal of science.

Scientists have identified a new gene variant (CDH10) that is highly common in autistic children. When researchers scrutinized the activity of the gene in the fetal brain, they discovered that it is most active in key regions that support language, speech and interpreting social behavior. These findings were published April 28 in the advance online edition of the journal Nature.

Previously, scientists believed that autism was a developmental disorder resulting from abnormal connections in the brain. However, this new research suggests that CDH10 plays a critical role in shaping the developing brain and may therefore contribute to a prenatal risk of autism.

Autism spectrum disorders (ASD) range from severe autism to mild Asperger’s syndrome.  In one of these new studies, of more than 10,000 people including those with ASD and their families, researchers found that genetic factors play a strong role in ASD.

I found this research fascinating because it confirms what I’ve observed in families that come to me for therapy. I find that frequently a child who is diagnosed with Asperger Syndrome has an undiagnosed parent with the same disorder. Click here to learn more about adults with Asperger Syndrome.

Journey for Asperger Syndrome Adolescents

The opportunity to travel and explore another culture is a once in a lifetime adventure for many young adults, but it is often off limits for Asperger youth.  Thankfully, more and more universities are establishing programs for Asperger teens.

I recently learned that USC University Center For Excellence in Developmental Disabilities at Children’s Hospital Los Angeles (CHLA) professionals have put together an adventure for students with Asperger Syndrome (AS). Thirteen days will be spent throughout England and Scotland with professionals from CHLA as well as graduate students who are experienced with students with AS. If you have AS and are between the ages of 16-20, this might be something to look into.

Apparently the goal of this trip is to boost independence and selfsufficiency. With many group activities, it will provide an opportunity to grow in a group environment as well as receive specific mentoring from staff members. There also lies the potential for making life-long friends with those who understand the personal struggles of Asperger Syndrome.

Please contact Beverly Daley, Ph.D. at bdaley@chla.usc.edu or (323) 361-2490 for more information.

If you have a loved one on the Spectrum, please check our private MeetUp group. We have members from around the world meeting online in intimate video conferences guided by Dr. Kathy Marshack.
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