Author: Kathy Marshack

A fascinating study at Bath University sheds some light on a possible reason why children with Asperger Syndrome (AS) have difficulties adjusting to change in their routine. Studies showed a low level of cortisol, a stress hormone, in children with AS. Normally, there is a surge in cortisol in the early morning hours, but that peak doesn’t occur for those with AS.

Mark Bronson, a psychologist at Bath University, commented, “Although these are early days, we think this difference in stress hormone levels could be really significant in explaining why children with AS are less able to react and cope with unexpected change.”

Bath and Bristol Universities plan to continue researching why children with AS find more situations stressful than other children. This will help parents and teachers comprehend what is happening and enable them to avoid adding unnecessary stress to the child.

For more information on this study, I recommend reading  an article on Psych Central entitled “New Theories of Autism, Asperger Syndrome”. Also visit my Frequently Asked Questions for more information on Asperger Syndrome.

Brenda Myles, founder of Autism Asperger Publishing Company and award winning author on autism, recently spoke at California University’s 2nd Annual P.E.P Rally and Autism Conference. She spoke to an audience of parents, educators, and providers who are dealing with autism. The conference focused on teaching young ones with autism how to overcome the challenges of interpreting communication and understanding others.
Myles spoke about the how autism hinders the ability to read non-verbal language and how those with autism think on a literal level. She also discussed the fact that children with autism need help with the “hidden curriculum” or unwritten rules of society that don’t come naturally.
I appreciated Myles realistic encouragement to this community. She said, “Teaching children with autism spectrum disorders about all of the unwritten rules of society seems an overwhelming task. I like to use the one-a-day method. If education professionals would teach one thing a day to a child with autism, they would cover 180 items a year. Other students will also benefit from the reminders. If parents of children with autism spectrum disorders would teach one thing each day, they would cover 365 items each year. Remember to grab the teachable moments because there are excellent ways to make sure they understand the hidden curriculum. These kids see the world so differently. Academic standards are only one piece of the puzzle. We can’t predict where anyone is going to be but we need to teach them ways to be successful in life. The potential is there.”
I am pleased that Autism Asperger Publishing Company (AAPC) is publishing my new book Life with a Partner or Spouse with Asperger Syndrome:  GOING OVER THE EDGE?. AAPC provides a variety of books, research, and conferences. Their mission to provide practical solutions to all things related to autism based off the latest research available.

With autism on the rise, more and more information is being written for those with autism – including “Asperger Syndrome” – and their loved ones. I have been doing a lot of reading on autism and have come across some excellent books on the subject. Here are a few that I highly recommend picking up:

Look Me in the Eye: My Life with Asperger’s – John Elder Robison
Intense, funny, inspiring autobiography of a young man coming of age with “Asperger’s Syndrome.” You can’t possibly understand what goes on in the mind of someone with “Asperger’s Syndrome,” if you are neuro-typical. The normal rules do not apply. But Robison describes the inner workings of his mind in a way that shows the incredible structure of an “Aspergian” mind. This is an excellent book for anyone trying to love and understand a loved one with “Asperger’s Syndrome.”

Songs of the Gorilla Nation: My Journey Through Autism – Dawn Prince-Hughes
A most beautiful and painful look at the struggle the author has lived with as she comes to terms with her “Asperger’s Syndrome.” What is so important about this book is that it is a woman’s story. So much is written by parents about raising a child with “Asperger’s Syndrome.” More recently we have learned some about grown men with this developmental disorder. Time Magazine even referred to them as Geeks. But what about women with this disorder? Dawn Prince-Hughes paints a most inspiring story of her rebirth from a disturbed girl and teen into a woman who is a leader in her field, a supportive partner, and a loving mother.

Pretending to Be Normal: Living With Asperger’s Syndrome – Liane Holliday Willey
I love this title! Pretending to be normal is the exact description of the lives of many with “Asperger’s Syndrome.” Pretending to be normal and never really being true to themselves. This book offers a better way to live one’s life. Not just for those suffering from “Asperger’s Syndrome,” this book helps their loved ones better understand the complexities of their “Asperger’s” loved ones.

 

Click here to learn about my book, Life with a Partner or Spouse with Asperger Syndrome:  GOING OVER THE EDGE?

When a child is diagnosed with autism, most people automatically think of how the parents will be affected. But what about the siblings of children of autism? How severely are they impacted?

Studies are now showing that these children will be affected in one way or another. One of the more obvious problems is that it will be more difficult for them to form a normal and healthy bond with their autistic sibling. It may also increase a tendency towards behavioral problems, depression and speech disabilities. Researchers recommend that siblings of autistic children can benefit from speech and language therapy.

Obviously, every child is different and their reaction to a sibling with autism will be varied. The point is that it is important to be aware of the possibilities and to take the necessary steps to ensure that each and every child, regardless of disabilities, has the proper care and guidance they need. More research on this subject is available in the article OPINION: How Do Siblings Affect Autistic Kids? by Teresa J. Foden from the Interactive Autism Network.

My new book, Life with a Partner or Spouse with Asperger Syndrome: GOING OVER THE EDGE, discusses the fact that a relationship with a loved one with Asperger Syndrome is difficult. I use stories to share some of the struggles I’ve personally observed in families between siblings, mates, parents and children. My hope is to help teach these loved ones how to have successful relationships and to take control of their lives.

If you are interested in ordering your own copy of the book, please sign-up for my newsletter so I can contact as soon as the book becomes available. Continue to read my blog for more updates!

Fox Searchlight has recently acquired the rights to a new film, ADAM, that debuted at the Sundance Film Festival in January. This is big news since it’s not the typical love story you’d find on the Hollywood scene. The story highlights the relationship between two young, single New Yorkers who live in the same apartment building. Adam is an electrical engineer and Beth is an elementary school teacher and aspiring writer. What makes this story so unique is that Adam suffers from Asperger Syndrome.

Although I haven’t seen it yet, it appears that ADAM is a heartwarming story of a young man struggling to live a normal life with AS. Apparently the movie producers worked hard to portray AS accurately and they never put the developmental disorder in a negative or disrespectful light. Jonathan Kaufman, founder of Disabilityworks, Inc. worked with the director of ADAM, to help maintain a realistic feel to the movie. Kaufman stated, “In a world where the number of kids diagnosed with autism is 1 in 150, this type of film will provide real insight into the life of someone with high functioning autism,” and he hopes, “provide real hope for millions of families.”

I agree that this is an important subject for a movie. However, I would hate to see it provide false hope for people who want their life to mirror this happy ending. Having an intimate relationship with someone with Asperger Syndrome is challenging and often times heart breaking. Movies are great for entertainment, but for real hope you need to look inside yourself. That’s what my new book, Life with a Partner or Spouse with Asperger Syndrome: Going over the Edge?, will encourage people to do.