Recommended Books on Asperger Syndrome

With autism on the rise, more and more information is being written for those with autism – including “Asperger Syndrome” – and their loved ones. I have been doing a lot of reading on autism and have come across some excellent books on the subject. Here are a few that I highly recommend picking up:

Look Me in the Eye: My Life with Asperger’s
– John Elder Robison
Intense, funny, inspiring autobiography of a young man coming of age with “Asperger’s Syndrome.” You can’t possibly understand what goes on in the mind of someone with “Asperger’s Syndrome,” if you are neuro-typical. The normal rules do not apply. But Robison describes the inner workings of his mind in a way that shows the incredible structure of an “Aspergian” mind. This is an excellent book for anyone trying to love and understand a loved one with “Asperger’s Syndrome.”

Songs of the Gorilla Nation: My Journey Through Autism
– Dawn Prince-Hughes
A most beautiful and painful look at the struggle the author has lived with as she comes to terms with her “Asperger’s Syndrome.” What is so important about this book is that it is a woman’s story. So much is written by parents about raising a child with “Asperger’s Syndrome.” More recently we have learned some about grown men with this developmental disorder. Time Magazine even referred to them as Geeks. But what about women with this disorder? Dawn Prince-Hughes paints a most inspiring story of her rebirth from a disturbed girl and teen into a woman who is a leader in her field, a supportive partner, and a loving mother.

Pretending to Be Normal: Living With Asperger’s Syndrome
– Liane Holliday Willey
I love this title! Pretending to be normal is the exact description of the lives of many with “Asperger’s Syndrome.” Pretending to be normal and never really being true to themselves. This book offers a better way to live one’s life. Not just for those suffering from “Asperger’s Syndrome,” this book helps their loved ones better understand the complexities of their “Asperger’s” loved ones.

Going Over the Edge

Going Over the Edge
Going Over the Edge

Going Over the Edge:
Life With a Partner or Spouse With Asperger Syndrome

by Kathy Marshack Ph.D.

Available at Amazon.com:
Paperback $21.95

Information on how to have a successful relationship with your autistic spouse! Delve into the dramatic impact autism spectrum disorder can have on the complex world of adult interpersonal relationships. In Life With a Partner or Spouse With Asperger Syndrome: Going Over the Edge? Practical Steps to Saving You and Your Relationship, psychologist Kathy Marshack shares poignant true stories based on her own life and the lives of her clients, focusing on how partners/spouses of someone with ASD can find true meaning and happiness. The author discusses sensitive issues and shows readers how to take control of their lives, avoid or grow away from dysfunctional behavior and dysfunctional relationships, and create a successful relationship with their spouse on the spectrum. Each chapter closes with a series of Lessons Learned that recap the main points of the chapter and offer new ways to look at these very unique challenges. Foreword by Stephen Shore, EdD.


To receive a complementary copy of a chapter from Going Over the Edge, subscribe to our newsletter below. We’ll give you instructions to get your free download.


In praise of Going Over The Edge

Going over the Edge? is a powerful illustration of the complexities of intimate relationships between individuals with autism spectrum disorders and their neurotypical partners. Dr. Marshack brings great clarity to the dynamic influences that shape these relationships … for better or for worse. She has brought stature to a voice from the autism community that has been waiting to be heard. Many family members and partners will appreciate the cathartic nature of her work, and professionals will find a depth of insight and feeling that is rarely articulated so well. Pay attention to every word of this book. There is nothing else like it!”— Sherry A. Moyer, B.S., Asperger Syndrome consultant, NHS Human Services, Pennsylvania

With vivid examples drawn from years of professional practice and life experience, Dr. Marshack expertly guides the reader towards success in marriage when Asperger Syndrome is present. Full of practical tips, the major lesson learned from this book is that learning to interface between the different ‘operating systems’ of spectrum and non- spectrum partners leads to better communication with greater mutual understanding and satisfaction. Highly rec- ommended to all seeking to learn more about Asperger Syndrome and long-term relationships.” — Yi Liu Shore

Siblings of Autistic Children Are Being Affected

When a child is diagnosed with autism, most people automatically think of how the parents will be affected. But what about the siblings of children of autism? How severely are they impacted?

Studies are now showing that these children will be affected in one way or another. One of the more obvious problems is that it will be more difficult for them to form a normal and healthy bond with their autistic sibling. It may also increase a tendency towards behavioral problems, depression and speech disabilities. Researchers recommend that siblings of autistic children can benefit from speech and language therapy.

Obviously, every child is different and their reaction to a sibling with autism will be varied. The point is that it is important to be aware of the possibilities and to take the necessary steps to ensure that each and every child, regardless of disabilities, has the proper care and guidance they need. More research on this subject is available in the article OPINION: How Do Siblings Affect Autistic Kids? by Teresa J. Foden from the Interactive Autism Network.

My new book, Life with a Partner or Spouse with Asperger Syndrome: GOING OVER THE EDGE, discusses the fact that a relationship with a loved one with Asperger Syndrome is difficult. I use stories to share some of the struggles I’ve personally observed in families between siblings, mates, parents and children. My hope is to help teach these loved ones how to have successful relationships and to take control of their lives.

If you are interested in ordering your own copy of the book, please sign-up for my newsletter so I can contact as soon as the book becomes available. Continue to read my blog for more updates!

A New Movie Puts Asperger Syndrome in a Positive Light… But sometimes life doesn’t have a Hollywood ending

Fox Searchlight has recently acquired the rights to a new film, ADAM, that debuted at the Sundance Film Festival in January. This is big news since it’s not the typical love story you’d find on the Hollywood scene. The story highlights the relationship between two young, single New Yorkers who live in the same apartment building. Adam is an electrical engineer and Beth is an elementary school teacher and aspiring writer. What makes this story so unique is that Adam suffers from Asperger Syndrome.

Although I haven’t seen it yet, it appears that ADAM is a heartwarming story of a young man struggling to live a normal life with AS. Apparently the movie producers worked hard to portray AS accurately and they never put the developmental disorder in a negative or disrespectful light. Jonathan Kaufman, founder of Disabilityworks, Inc. worked with the director of ADAM, to help maintain a realistic feel to the movie. Kaufman stated, “In a world where the number of kids diagnosed with autism is 1 in 150, this type of film will provide real insight into the life of someone with high functioning autism,” and he hopes, “provide real hope for millions of families.”

I agree that this is an important subject for a movie. However, I would hate to see it provide false hope for people who want their life to mirror this happy ending. Having an intimate relationship with someone with Asperger Syndrome is challenging and often times heart breaking. Movies are great for entertainment, but for real hope you need to look inside yourself. That’s what my new book, Life with a Partner or Spouse with Asperger Syndrome: Going over the Edge?, will encourage people to do.

Divorce is more common in families with ADHD

A recent study at the University of Buffalo found that couples with a child with ADHD are twice as likely to get divorced than couples without a child with this disorder. Dr. William E. Pelham Jr., professor of psychology and pediatrics, states a possible reason, “We’ve known that ADHD kids can be very stressful for their parents. What this [new study] shows is that stress occurs in the marriage as well as in other aspects of the parents’ lives.”

Dealing with a child with ADHD can cause constant arguments between parents possibly because they don’t know how to handle the issues. “If they don’t get together on how to solve the problem, the child’s behavior is not going to improve,” Dr. Pelham says. “The situation gets worse, and if those arguments don’t get resolved, not only does the child’s parenting not improve but the marriage worsens — and almost a quarter of the families get divorced.”

Parents really need to develop techniques for managing the child’s behavior that they both agree on. Most often parents need help from a mental health care professional to counsel both the child and the parents. They can help them to develop healthy new skills, attitudes, and ways of relating to each other. If parents can work together, they can give the love and support that their child needs without sacrificing their marriage.

For more information on how to cope with ADHD, click on the link. Or feel free to contact my office to set up an appointment.

Three Ways to Develop the Art of Listening

couple talking but true communication requires listening mostly Doesn’t it feel good when you’ve had a meaningful exchange of thoughts and feelings with someone who really understands you? It contributes to your sense of self-worth, belonging, and security. On the other hand, it can sour your day when communication goes wrong because of misunderstandings. What determines the outcome of your conversations?

The most important part of communicating is listening. It’s been said that that’s why we have only one mouth but have two ears. You can’t assume that you understanding someone simply because you know them well or you have much in common. Not only does a person have to listen to the actual words spoken, but there’s so much more that communicates feelings and thoughts.

Communicating is an art. It’s a complex on-going process that can be done skillfully with time and real effort. Here are three tips that will help you to improve your listening skills: 

  • Listen for the meaning. Words often don’t reflect what the person really means. Become a better listener by asking yourself, “Why is he or she telling me this?” Put yourself in his or her shoes and try to discover the meaning behind the words or behavior.
  • Notice why the speaker chose you. When people communicate they unconsciously and many times consciously identify a certain person to talk with. Perhaps you have purposefully been chosen because the speaker needs a certain kind of feedback that they hope you will give.
  • Accept the meaningfulness of all communication no matter how small. Do you tend to dismiss “small talk” as unimportant? There is nothing small about. It is a quick way to build rapport and trust between people. It’s how we stay connected. Often in our busy lives we skip the small talk and get on with the agenda and, as a result, relationships suffer.

An important part of listening is truly caring about the other individual. If you are genuine, the other individual feels appreciated and tries that much harder to send you clear signals that require less translating.

If you’ve tried to develop good communication skills but you’re still experiencing difficulty, seek out the assistance of a skilled therapist. Are you near Portland, Oregon or Vancouver, Washington? Contact my office and set up an appointment. You’ll learn life long skills that you can use to improve all of your relationships 
If you have a loved one on the Spectrum, please check our private MeetUp group. We have members from around the world meeting online in intimate video conferences guided by Dr. Kathy Marshack.
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